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Proclamation #215 - Neurofibromatosis Awareness Month
Neurofibromatosis Awareness Month
WHEREAS, the Children’s Tumor Foundation is observing May as National Neurofibromatosis (NF) Awareness Month to educate the public about this rare genetic disorder; and
WHEREAS, although over 100,000 Americans are living with NF and one in every 3,000 babies is born with the disorder, it is still relatively unknown to the public; and WHEREAS, NF affects people of all races and ethnic origins, and both sexes; and WHEREAS, NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined; and
WHEREAS, NF causes tumors to grow on nerves throughout the body and also can affect development of the brain, cardiovascular system, bones and skin; and WHEREAS, the disorder can lead to the loss of sight or hearing; skeletal defects, such as abnormal curvature of the spine or bowing of the leg; learning disabilities; disfigurement; chronic pain; cardiovascular problems, including high blood pressure; cancer; and a wide variety of other complications; and WHEREAS, The Children’s Tumor Foundation leads efforts to promote and financially sponsor world-class medical research aimed at finding effective treatments and, ultimately, a cure for NF; and
WHEREAS, The Children’s Tumor Foundation is actively fostering collaborative partnerships in both science and industry to speed the drug research and development process through a number of consortia called Synodos; and
WHEREAS, The Children’s Tumor Foundation works to improve access to quality patient healthcare through its national NF Clinic Network; and
WHEREAS, the Children’s Tumor Foundation provides patient and family support through its information resources, youth programs, and local chapter activities; and
WHEREAS, much remains to be done in raising public awareness of NF to help promote early diagnosis, proper management and treatment, prevention of complications, and support for research.
THEREFORE, We the Commissioners of Warren County, in recognition of this important initiative, do hereby proclaim May 2016 as Neurofibromatosis Awareness Month in WARREN COUNTY.
ADOPTED this 27th of April 2016.
COMMISSIONERS OF WARREN COUNTY
Attest: Vice Chair
Pamela J. Matve Jeff Eggleston
Chief Clerk Secretary